About NF

Neurofibromatosis (NF) is not contagious, it’s genetic. You’re either born with it or you’re not. Currently NF affects 1 in 3,000 births, making it the most common genetic disorder in the world.

The condition may express itself as a little more than a cluster of distinctive freckles known as “café au lait” spots. In other cases, NF can cause tumors (fibromas) to grow unchecked along a person’s nervous system, including the brain and spinal cord. This can cause a range of difficulties depending upon severity—from hearing loss and cardiovascular risks to blindness and severe pain. The tumors are usually noncancerous but can become cancerous over time—so tumor growth and pathology are closely monitored.

There is no cure for NF. But advancements in the quality of care and quality of life are constantly being made. According to the Mayo Clinic, “treatment focuses on encouraging healthy growth and development in children who are affected by the disorder and on early management of complications. When neurofibromatosis causes large tumors or tumors that press on a nerve, surgery can reduce symptoms. Some people may benefit from other therapies, such as stereotactic radiosurgery or medications to control pain. A new medication is available to treat tumors in children, and other new treatments are being developed.”

For more information on Neurofibromatosis and the work being done to help those who suffer, please explore these resources.

For more info on investing in the initial seed-funding round of “A Tremendous Day” please visit our investment site now.